Thursday 07 August 2014

You can barely move nowadays without running into someone campaining for something. Adopt a dog, run for cancer… The list goes on and on. Now don’t get me wrong, all of these things are necessary and good things but when I have someone knocking on my door, and its always as you’ve just sat down to eat, then just once I want it to be a person telling me of a new initiative for Epilepsy research or a new program to help with Depression and Mental Health Illnesses..

189131-doorknock

I’ve suffered from Mental Health Illnesses since I was a teenager and for years have been up and down, and on and off medication.

DEPRESSION-SYMPTOMS

Sitting in the doctors office at 27 years old and being told that the four visits to the neurologists in the previous five years had all been wrong was unreal. To have the neurologist explain to me that without a full scan, she couldn’t be certain but that she was convinced that not only did I have epilepsy but that I had probably had in one form or another for my entire life and that I took three separate types of seizures… well it was surreal to say the least.

My shocked expression had her calling my husband in from the waiting room where she proceeded to explain to us the various tests that would be upcoming, the appointments I’d have to go to and the tablets that she wanted me to take starting that day I was lucky to have my husband there. He listened and took it all in. I just sat.

Now it shouldn’t have been a surprise. My father had epilepsy, two of my half sisters, both from opposite sides of the family also had it as did many of my extended family.

It had been suspected a number of occasions over the years, but hearing it confirmed made it all seem that much scarier.

epilepsywhat-is-epilepsy

So what had landed me in that office? The previous week I returned home on my lunch break, the day was sweltering hot and splashing water on my face was the last thing I remembered. Becoming aware again, I realised I was on the floor and sporting a huge bump on my forehead from where I had hit the sink.

Not thinking it serious I called my boss, returned to work until she could get someone to cover me then went home. I din’t even see a doctor till two days later when my husband forced me to, worrying that maybe I had concussion as I just didn’t seem ‘myself.’

(Now we’d had a really rotten few years before this. My husband was just overcoming a battle with cancer. 4 yrs cancer free now, yay!!!)

The following weeks were a nightmare. The amount of times I found myself on the floor, or walking with no idea how I had got there. The uneasy sensation of being almost seasick, the prickling painful pins and needles that ran across my hands and face and the smell of burning had me constantly living on edge.

 Travelling for miles to various hospitals was a nightmare. The endless poking and sticking and machines drove me to distraction. I felt certain that if I had to sit through one more exam I would loose the plot completely.

yyyy

And so I refused the last test, the one that would have me hooked to machines, in the hospital, for three days. I will not lie and tell you that the epilepsy nurse, neurologist and GP appreciated my choice but they all understood it.

Diagnosed with stress and anxiety I soon fell into a depressive state that was hard to deal with. Sinking lower and lower as the seizures continued I ended up unable to eat, sleep or even leave the house.

depression_signs_check

Signed of work I only plummeted deeper when I realised the only social life I had surrounded work mates. And that the previous 5 years of training to be a preschool teacher were worthless. Who would hire me now, who would trust me around small children. I certainly didn’t.

Sitting home every day only caused my depression and anxiety to spiral further which in turn had a knock-on effect with my sleep and all had a knock on effect with the epilepsy. Trying to get a handle on all three is something that even now I have still not managed to do. Despite knowing that, stress, depression and lack of sleep can bring on my seizures, they are not things I can control.

I had never wanted to be on daily medications so had always shyed away from antidepressants but I figured that now I had to take epilepsy meds every day another set of tablets couldn’t hurt so I agreed to the antidepressants.

It can take a lot of swapping and changing but the only way to find the best one for you is trial and error. I have the added bonus that many counter act the benefits of the epilepsy medication.
Finding the correct balance of medication is ongoing.

Along with the epilepsy medications I also now take antidepressants and I have sleeping tablets for when things are just too crazy with my sleeping pattern. Since I’ve done these my seizures have altered. Instead of suffering multiple seizures every day I now find myself having weeks with none. Now I’m not saying that everything is fine and perfect, it’s not. I still have seizures and they’re still bad. I still have very low moods and there are still times when I could just scream with the feelings elicited within me.

The significant problem for me has always been the lack of control over my own body. Not knowing when a seizure will strike, how it will be, who will witness it.. they are all worries, but I found that you can either let them get you down or you can move past it.

First-Aid-for-Seizures3_Page_2epilepsy

 

Now the worry is still there but it no longer controls my life. I refuse to be a victim to epilepsy, I refuse to allow it to keep me a prisoner in my own home. Again this wasn’t something that happened overnight. It took two years of moping around the house before I realised I could help myself.

dff2f51d608653783d2599e1b5954d2d

Again this isn’t something that happened at once, it is ongoing. I gave in and saw the mental health nurse and together with my other doctors I’m improving every day.
There is no miracle cure, no wonder day when everything is fixed. You just have to hope that today will be a bit better.

tumblr_m5beup6i8d1qdhlgso1_500

The other hard part was the loss of my wage. There are benefits out there, it’s just complicated to work them all out. Luckily I found https://www.epilepsy.org.uk/info/help-support. They were really helpful.

Epilepsy is part of who I am, but it is not the only part. Depression is a part of who I am, but it is not the only part.

It may take time, but persevere, it doesn’t have to be all you are either.

Please-know-it-gets-better-it-truly-does-you-are-a-unique

 

I now have one book published, this active website and more books to come. Epilepsy and Depression don’t have to ruin your life, let them be your new start.

 

Famous People who had/have epilepsy.
Vincent van Gogh
Sir Isaac Newton
Napoleon Bonaparte
Agatha Christie
Charles Dickens
Leonardo Da Vinci
Theodore Roosevelt
George Frederick Handel
Lord Byron
Peter Tchaikovsky
Sir Walter Scott

There are many, check out this site.. http://www.disabled-world.com/artman/publish/epilepsy-famous.shtml for more names and more information about the ones listed above.

Always report any incidents, changes, seizures etc to your GP, neurologist, epilepsy nurse.

 

Famous people who had/have Depression or a Mental Health Illness. Depression is hard to catergorize as there are so many types, ie, postpartum depression, bipolar disorder etc.

Owen Wilson
Heath Ledger
Demi Lovato
Catherine Zeta-Jones
Princess Diana

(info from here http://www.health.com/health/gallery/0,,20526304,00.html)

 

 On a serious note, there are people to listen. If you are struggling and feel you have no one to talk to try here,

http://www.suicide-prevention.org.uk/

Breathing Space 0800 83 85 87

Samaritans 08457 90 90 90

 

Samaritans-poster-007

 

I saw this, and thought it was a lovely way to pass on a message…

b60bd2b7d4fa443280fc720ff1d8ee06

Thursday 31 July 2014

So today I had plans on a piece I had written about Epilepsy and then my computer went a bit funny on Facebook, it kept flicking pages and consistently took me to one that I hadn’t been on in a while. Uncle Bush, who was in fact my dad’s cousin, Hugh Gracie died on the 16th June 2013 at only 51. He left behind his wife and two teenage sons. Not to mention the rest of his family and many many friends. His funeral hosted an amount of people in one place that I have not been witness to before. The cemetery was packed…
Now call it what you want but a little bit of me wants to think it wasn’t just a fault that kept pulling me to his page..
I won’t get into a life after death debate, I see points from both sides but my own personal belief, more of a want is that there is something beyond. That my loved ones who have passed on aren’t just gone. I believe their spirit lives on…
Anyway.. It had me thinking of the people I have lost. These last few years have been particularly hard and a lot of loved ones have been prematurely taken.
I don’t want to sink into depression with thoughts of death. I make no secret of the fact that I suffer from depression and are medicated for this. What I thought instead was that I’d look at the good. At the memories no one can take from you and the ones that make you laugh and smile and cry.
So this is my remembrance for a few of the people I have been unfortunate enough to loose.

 

Here are some of my memories of them.
Aunt Anne (my great aunt, sister of my papa Roy)) – Aunt Anne once had a little dog called Katie, when I would visit she would have me walk the dog on the field opposite her house with bribes of a glass of Irn Bru. I remember getting back, pouring rain and she told me the dog wasn’t walked enough and sent me out to do it again!
Aunt Ann (Brownlee, my gran’s sister.) – Aunt Ann used to watch us from time to time, she bought Aladdin when it first came out for us to watch, I can’t believe how excited it made us. Even today when I see something from Aladdin I picture her face and smile.
Papa (Tommy, my gran’s second husband.) – Papa was sly! Gran had gone to the shop and asked that he not go out. I went to the bathroom and Mark was talking to him. I swear I was only in there for a couple of minutes, come out, Mark’s alone. I asked him where papa was, old bugger had snuck out to the bookies!!! (Should point out he was in his 80’s at this point and we were meant to be going for lunch, we didn’t just tell him he couldn’t go out.)
Uncle Jim (Gracie. I just don’t know how to explain the relationships, if we dont know how they often just become aunt or uncle. I think was related like this, his mother in law was the sister of my grans dad. Work that out!!) – Always in these blue overalls, smelling of a mixture of oil and mechanical stuff and cigarette smoke. I don’t remember him without a cigarette in his mouth but I do remember him flicking his ash into his pocket instead of the floor or an ashtray.
Uncle Bush (Bush is Jim from above’s son) – Bush had a finger missing, many stories filled my childhood of how he told a lie so it fell of, he picked his nose and it got stuck up there.. and many, many more. His knuckles had had love and hate tattooed on them, without the finger it ended up as love and hat. I will never forget the jokes of how ‘someone had to love hats’.
(Mark has the same finger missing, Bush was desperate for him to have matching tattoos.)
Nanna Orange (Mark’s nan.) – Nana Orange was hilarious, the first day I met her I had gone to pick up a magazine rack that she was binning. After receiving every detail about the piece of furniture from the time she owned it she then pressed £25 into my hand to thank me for taking it!
Nan Cockell (My husband, Mark’s nan) – I never really had a chance to really know Nan Cockell but she insisted each time that I visited on bringing out this same bottle of lemonade so I could have a glass (I dont drink tea or coffee but really just wanted water). The lemonade was as old as time and sooo flat, but she’d watch you drink every last drop and then put it away for next time!
I also want to point out two others. My Grandad, Gordon was great. I remember fondly the time I spent sat on his lap in front of his massive tropical fish tank while he told me all about them. And Uncle Geordie (Uncle Jim’s brother) once the tallest man in Scotland he’s in record books and everything, at 7ft4 he really was a gentle giant. Another lap I spent time on he was just a great big teddy to cuddle with. The smell of a pipe always puts me in my mind of snuggling up on his specially made chair and listenin to stories.

 

Then there’s something else, the animals that made a really strong impact in your life. I have been blessed to have owned many animals, my whole family are animal lovers and so we have always been surrounded and unfortunately they pass on.
Her are some that really touched my life.

 

Chelsea – Chelsea was my best friend. She slept in my bed, I walked her, fed her and I even still have the scar on my thumb from wrestling a tin of dog food to feed her! Chelsea was my ‘get out of being grounded’. I’d just take her for a walk, for five hours and in the company of my friends!
Joey (Joe Louis) – To begin with his mum was a rescue and only six months old. She had to have an emergency c-section and he was the only surviving kitten. We were only allowed to take our cats home because the vet advised that both mother and kitten wouldn’t survive. I was only 17, Mark and I were a couple but I lived alone with my cats. Well he made it, hand reared, getting up for bottles every couple of hours! He was really daft. My favourite memory was this: I never closed my window, they could just come and go onto the balcony, one day a bird hit the patio door so I closed this window for the first time. Joey didn’t get that and he proceeded to run, full speed into the room and jump straight into the glass. Hmm, reading it back sounds a little mean but it really was funny and he wasn’t hurt just incredibly confused as to why he couldn’t get out the window.

 

Not everyone has been mentioned here but I’m sharing with you the ones that affected me most.
I don’t have many pictures on my computer and the ones I do have are blurry and not great but they are all I have. (I do have some printed but I don’t have a scanner or anything.)

Untitled

 

Anyway, thanks for reading and keep strong for your own losses.
Next week I’ll upload the piece I wrote on Epilepsy.
31525_20130222_204502_happiness_04

Teaser Tuesday! Tuesday July 29th

Your Tuesday teaser comes from Ina – Highland Fairlings – Book One

Available to buy (Check out where in the medieval/ancient romance tab.)

 

“Donaldina Elliot!”

Ina looked towards the kitchen door, no longer hiding her actions from her upset father’s furious eyes.

Still her fathers impressive muscular form did not hint to his advancing years as he took up the space of the doorframe. His hands on his hips he looked angrily at Ina where she stood.

Walking slowly around the counter where she had been working kneading bread she wiped her floured hands on the already stained brown gown she wore. An annoying curl was escaping in the steamy heat of the room and frizzing before her eyes.

“Whit are ye doing in the damn kitchens again” Her father’s loud bellow frightened many of the other staff who found themselves suddenly working at the opposite of the room to them, “Ye are a Lady, Ina. Ladies dinna work in the kitchen.”

 

1. Where I work my magic!!!!

So, it is a well-known fact that I always write on paper first. I do not mesh well with computers. I know, I know, I’m supposed to be the generation of technology.. I’ve been told it a million times before. Doesn’t alter anything, I’m afraid. Not even the two years of office and business studies I took when I was at school (in Scotland) helped. I can type and I know my finger keys and I can still picture the teacher peering over my shoulder, breathing down my neck…
Well.. That is neither here nor there any more, suffice to say that computers and I are not very good friends.
That said, I do write at my desk. I LOVE my desk.

004

This great big wooden monstrosity was a boot sale find that I managed to convince my mum to give me! It is far too large for my room and partially blocks one window but I love it nonetheless.
It is scraped and scratched and dented. There are gouges and shelves that have been ripped out and repositioned.
I was going to clear it all down, the husband suggested it would make me appear more organised, but the truth of the matter is that I’m not organised.   I would never allow anyone a glimpse into the drawers. That is where everything I’m working on is stored and really shows how unorganised and messy I am.
With a combination of books, DVD’s, knick knacks and pictures, the shelves are overflowing. The shelf at the bottom, where feet go is home to my many, many scraps of paper holding random ideas and scenes.
There are many pens littering the top and always a bag of mints lovingly supplied by my wonderful friend and her mother who run the local sweetshop, Nicola and Yvonne. I run the risk of bankrupting myself whenever I step in their store!!
My two cats are currently being fed on my desk. Not ideal but till I can work something else out it has to do as the dog steals their food otherwise. The two bottom shelves are always kept empty anyway as both cats have habits of getting up anyway, Gid is very keen to sit on the paper I am writing on and Nessie is very enthusiastic about pens!!
The computer monitor, when I am writing, ends up covered in post it notes.

 

 

 

From Highland Fairlings series – Book One – Ina

“A collection of books that lined one wall were not nearly as many as the books that lined the little used Brothaigh library but each looked well-worn from many readings. The Laird’s desk was a heavy piece of furniture that was cluttered with many pieces of parchment and various objects that held great mystery.
Alasdair had once heard that you could tell a man’s character from his possessions and he found that Laird Elliot’s manically arranged possessions did not give a hint to the man who was too busy allowing his daughter to fight like a man than anything else. Or perhaps it did.”

 

 

Teaser Tuesday! Tuesday 22nd July 2014

Your Tuesday teaser comes from Ina – Highland Fairlings – Book One

Available to buy (Check out where in the medieval/ancient romance tab.)

 

 

“Aye,” Alasdair agreed touching the still tender underneath of his chin, “I made the mistake of looking upon her as a lady and no the wee hellcat she truly is. I’ll nay be making that mistake again and the next time she has a weapon in her hand I intend tay run the other way.”

Declan laughed, “If yer gonna court her surely ye shouldna be tempting her tay cut ye down. Get her flowers or something.”

Continue reading

Ina- Highland Fairlings – Book one – Availability

Available here
It shouldn’t be long till it’s available further in ebook format.

Print
Amazon.co.uk and Amazon.com

http://www.lulu.com/shop/emma-ruthven-stevenson/ina-highland-fairlings-series-book-one/paperback/product-21678424.html
http://www.barnesandnoble.com/s?store=allproducts&keyword=emma+ruthvn-stevenson

Ebook
http://www.lulu.com/shop/emma-ruthven-stevenson/ina-highland-fairlings-series-book-one/ebook/product-21686876.html

http://www.kobobooks.com/ebook/Ina-Highland-Fairlings-Series-Book/book-eZeN2YwBokS0dnLEywcYEA/page1.html?s=GQOlL1Lo8kC5oDNX2OUAvA&r=1
http://www.barnesandnoble.com/w/ina-highland-fairlings-series-book-one-emma-ruthven-stevenson/1119910117?ean=9781291928426&itm=1&usri=emma+ruthven-stevenson

 

Teaser Tuesday – Peeking at Ina

Alasdair laughed and pushed back his mane of unbound, long blonde hair over his shoulder in a gesture that proved a habit for him and had the lasses swooning with delight, “Well now, Declan, ye and yer da should nay be encouraging her tay fight. Tis nay seemly. Lasses belong sewing or some such other nonsense as that.”
“Nay seemly?” Declan’s voice raised, “Were it that seemly when I spied one of the kitchen wenches sneaking frae yer chamber this morning?” Declan raised his eyes, holding his friend’s sight only to be met with a disinterested shrug of the shoulders as Alasdair took a further deep gulp of the appropriated uisge beatha.

 

Sneek Peek from Highland Fairlings – Book Two – Ebha – July 2014

Sneek Peek from Highland Fairlings – Book Two – Ebha
(July 2014, currently in editing still so no release date yet.)

 

 

Alasdair Brothaigh threw his hands in the air, his frustration clear as he turned to his beloved wife, “I blame ye!”
Ina appeared startled at first but then settled loving eyes on her husband, “just let her be.”
Ebha turned to face her father in surprise at his next words.
“Ebha, ye were raised tay be a dutiful wife. Ye have always known yer destiny.” Reaching out a large calloused hand he smoothed back one of her wild curls, “Know this. Ye do not honour yer husband and ye shame yer whole clan tay be thinking tay present yerself in such rags,” he indicated the well worn dress she had pilfered from a scullery maid,”Ye only make things harder than they need be.”
Her mother moved closer, looking up at her,”Farrell Quainn IS yer husband. Ye ken that. Ye shame me.Ye have nay been so rude as this afore but ye are a woman so ye say, so do as ye please. I was once young and spoilt but yer da saw through my faults and loved me. I only hope yer husband can see the real ye and nay what yer thinking tay show.” Her mothers eyes looked bright with unshed tears, “Whether ye like it or not, he is yer husband and he may treat ye how he chooses. If ye presented the wife we had hoped ye would be, then ye may convince love and happiness tay blossom. What ye are doing now shows only insolence and disrespect.” Sucking in a deep breath bright blue eyes met and held her own, “Today ye disappoint me, and I am shamed tay call ye my daughter.”
Ebha gasped, her own tears flowing, as her normally gentle and jovial mother rushed from the room.